Publicaciones en las que colabora con Manuel Posada de la Paz (4)

2016

  1. Consensus on the criteria needed for creating a rare-disease patient registry. A Delphi study

    Journal of Public Health (United Kingdom), Vol. 38, Núm. 2, pp. e178-e186

2015

  1. Identifying data sources for a national population-based registry: The experience of the Spanish rare diseases registry

    Public Health, Vol. 129, Núm. 3, pp. 271-275

2014

  1. National Rare Disease Registries: Overview from Spain

    Orphanet Journal of Rare Diseases

2010

  1. Rare diseases epidemiology research

    Advances in Experimental Medicine and Biology, Vol. 686, pp. 17-39