ÓSCAR ERNESTO
ZURRIAGA LLORENS
TITULAR DE UNIVERSIDAD
Manuel
Posada de la Paz
Manuel Posada de la Paz-rekin lankidetzan egindako argitalpenak (4)
2016
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Consensus on the criteria needed for creating a rare-disease patient registry. A Delphi study
Journal of Public Health (United Kingdom), Vol. 38, Núm. 2, pp. e178-e186
2015
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Identifying data sources for a national population-based registry: The experience of the Spanish rare diseases registry
Public Health, Vol. 129, Núm. 3, pp. 271-275
2014
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National Rare Disease Registries: Overview from Spain
Orphanet Journal of Rare Diseases
2010
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Rare diseases epidemiology research
Advances in Experimental Medicine and Biology, Vol. 686, pp. 17-39