Revisión Sistemática Sobre el Funcionamiento Familiar en Familias con un Hijo con una Enfermedad Poco Frecuente

  1. Florencia Assalone
  2. Javiera Ortega
  3. Natalia Vázquez
  4. Victoria Vázquez
Revista:
Papeles del psicólogo

ISSN: 0214-7823,  1886-1415

Año de publicación: 2024

Título del ejemplar: Unidades de análisis y diseño del comportamiento en organizaciones supranacionales

Volumen: 45

Número: 1

Páginas: 39-47

Tipo: Artículo

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Otras publicaciones en: Papeles del psicólogo

Resumen

El presente estudio es una revisión sistemática de las investigaciones realizadas sobre el funcionamiento familiar en familias con niños con una enfermedad poco frecuente. La búsqueda se realizó en las bases de datos Pubmed, EBSCO y Google Académico, siguiendo los lineamientos PRISMA. Luego de aplicar los criterios de inclusión y exclusión a los artículos 460 encontrados inicialmente, un total de 55 artículos conformaron la muestra final. A partir del análisis de los resultados se establecieron las siguientes temáticas abordadas en relación al funcionameinto familiar: impacto del diagnóstico; función y responsabilidades del cuidador; funcionamiento familiar; impacto en la esfera emocional; efectos en la vida conyugal y social; estrategias de afrontamiento; familia, cuidados y sistema de salud. Los hallazgos de este estudio pueden proporcionar una justificación para considerar los factores asociados al funcionamiento familiar al momento de dar el diagnóstico de una EPOF y pensar un tratamiento.

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