Sufro una grave enfermedad raraReto a cantar y hacer coreografías en TikTok

Referencias bibliográficas

• Alexander, Jeffrey C. (2006). “Cultural pragmatics: social performance between ritual and strategy”. In: Alexander, Jeffrey C.; Giesen, Bernhard; Mast, Jason L. (eds.). Social performance: symbolic action, cultural pragmatic and ritual. Cambridge, UK: Cambridge University Press, pp. 29-90. ISBN: 978 05216746 21
• Anderson, Katie-Elson (2020). “Getting acquainted with social networks and apps: it’s time to talk about TikTok”. Library hi tech news, v. 37, n. 4, pp. 7-12. https://doi.org/10.1108/LHTN-01-2020-0001
• Andreu-Pérez, Javier; Poon, Carmen C. Y.; Merrifield, Robert D.; Wong, Stephen T. C.; Yang, Guang-Zhong (2015). “Big data for health”. IEEE journal of biomedical and health informatics, v. 19, n. 4, pp. 1193-1208. https://doi.org/10.1109/JBHI.2015.2450362
• Armayones, Manuel; Requena, Samantha; Gómez-Zúñiga, Beni; Pousada, Modesta; Bañón-Hernández, Antonio-Miguel (2015). “El uso de Facebook en asociaciones españolas de enfermedades raras: ¿cómo y para qué lo utilizan?”. Gaceta sanitaria, v. 29, n. 5, pp. 335-340. https://doi.org/10.1016/j.gaceta.2015.05.007
• Attai, Deanna J.; Anderson, Patricia F.; Fisch, Michael J.; Graham, David L.; Katz, Matthew S.; Kesselheim, Jennifer; Markham, Merry-Jennifer; Pennel, Nathan A.; Sedrak, Mina S.; Thompson, Michael A.; Utengen, Audun; Dizon, Don S. (2017). “Risks and benefits of Twitter use by hematologists/oncologists in the era of digital medicine”. Seminars in hematology, n. 54, n. 4, pp. 198-204. https://doi.org/10.1053/j.seminhematol.2017.08.001
• Avolio, Bruce J.; Gardner, William L. (2005). “Authentic leadership development: Getting to the root of positive forms of leadership”. The leadership quarterly, v. 16, n. 3, pp. 315-338. https://doi.org/10.1016/j.leaqua.2005.03.001
• Bañón-Hernández, Antonio-Miguel (2007). “Las enfermedades raras y su representación discursiva. Propuestas para un análisis crítico”. Discurso & sociedad, v. 1, n. 2, pp. 188-229. http://www.dissoc.org/ediciones/v01n02/DS1(2)Banon.pdf
• Bañón-Hernández, Antonio-Miguel; Fornieles-Alcaraz, Javier; Solves-Almela, Josep A.; Rius-Sanchis, Inmaculada (2011). Communication strategies and challenges for rare diseases: medical research as a referent: a quantitative-discursive study Spanish printed and digital written press (2009-2010). Valencia: Centro de investigación biomédica en red de enfermedades raras. FEDER. ISBN: 978 84 694 0596 3
• Basch, Corey H.; Hillyer, Grace C.; Jaime, Christie (2020). “Covid-19 on TikTok: harnessing an emerging social media platform to convey important public health messages”. International journal of adolescent medicine and health, v. 1, pre-published online. https://doi.org/10.1515/ijamh-2020-0111
• Beall, Jeffrey (2001). “Internet resources in rare diseases”. Health care on the internet, v. 5, n. 4, pp. 11-17. https://doi.org/10.1300/J138v05n04_02
• Beer, Chris (2019). “Is TikTok setting the scene for music on social media?”. Global web index, 3 January. https://blog.gwi.com/trends/tiktok-music-social-media/
• Ben-Aharon, Irit; Goshen-Lago, Tal; Turgeman, Ilit; Fontana, Elisa; Smyth, Elizabeth; Lordick, Florian (2020). “Young patients with cancer and a digital social network: the voice beyond the clinic”. ESMO open cancer horizons, v. 5, n. 3, pp. 1-4. https://doi.org/10.1136/esmoopen-2019-000651
• Bender, Jacqueline L.; Jiménez-Marroquín, María-Carolina; Jadad, Alejandro R. (2011): “Seeking support on Facebook: a content analysis of breast cancer groups”. Journal of medical internet research, v. 13, n. 1, e16. https://doi.org/10.2196/jmir.1560
• Bi, Qiqing; Shen, Lining; Evans, Richard; Zhang, Zhiguo; Wang, Shimin; Dai, Wei; Liu, Cui (2020). “Determining the topic evolution and sentiment polarity for albinism in a Chinese online health community: Machine learning and social network analysis”. JMIR Medical informatics, v. 8, n. 5, pp. 1-16. https://doi.org/10.2196/17813
• Boatman, Dannell D.; Eason, Susan; Conn, Mary-Ellen; Kennedy-Rea, Stephenie K. (2021). “Human papillomavirus vaccine messaging on TikTok: Social media content analysis”. Health promotion practice, pre-published online. https://doi.org/10.1177/15248399211013002
• Calvillo, Jorge; Román, Isabel; Roa, Laura M. (2013). “How technology is empowering patients? A literature review”. Health expectations, v. 18, n. 5, pp. 643-652. https://doi.org/10.1111/hex.12089
• Chapple, Craig (2020). “TikTok crosses 2 billion downloads after best quarter for any app aver”. Sensor tower, 29 April. https://sensortower.com/blog/tiktok-downloads-2-billion
• Chen, Qiang; Min, Chen; Zhang, Wei; Ma, Xiaoyue; Evans, Richard (2021). “Factors driving citizen engagement with government TikTok accounts during the Covid-19 pandemic: Model development and analysis”. Journal of medical internet research, v. 23, n. 2, e21463. https://doi.org/10.2196/21463
• Clarke, Joe T. R.; Coyle, Doug; Evans, Gerald; Martin, Janet; Winquist, Eric (2014). “Toward a functional definition of a rare disease for regulatory authorities and funding agencies”. Value in health, v. 17, n. 8, pp. 757-761. https://doi.org/10.1016/j.jval.2014.08.2672
• Crowe, Ashleen; McAneney, Helen; Morrison, Patrick J.; Cupples, Margaret E.; McKnight, Amy-Jayne (2020). “A quick reference guide for rare disease: supporting rare disease management in general practice”. British journal of general practice, v. 70, n. 694, pp. 260-261. https://doi.org/10.3399/bjgp20X709853
• Cumbraos-Sánchez, María-José; Hermoso, Ramón; Iñiguez, David; Paño-Pardo, José-Ramón; Allende-Bandres, María-Ángeles; Latorre-Martínez, María-Pilar (2019). “Qualitative and quantitative evaluation of the use of Twitter as a tool of antimicrobial stewardship”. International journal of medical informatics, v. 131, pp. 1-10. https://doi.org/10.1016/j.ijmedinf.2019.103955
• Davies, William (2016). ”Insights into rare diseases from social media surveys”. Orphanet journal of rare diseases, v. 11, n. 151, pp. 1-5. https://doi.org/10.1186/s13023-016-0532-x
• De-la-Torre-Díez, Isabel; Díaz-Pernas, Francisco-Javier; Antón-Rodríguez, Miriam (2012). “A content analysis of chronic diseases social groups on Facebook and Twitter”. Telemedicine and e-health, v. 18, n. 6, pp. 404-408. https://doi.org/10.1089/tmj.2011.0227
• Dhar, Vikrom K.; Kim, Young; Graff, Justin T.; Jung, Andrew D.; Garret, Jennifer; Dick, Lauren E.; Harris, Jennifer; Shah, Shimul A. (2018). “Benefit of social media on patient engagement and satisfaction: results of a 9-month, qualitative pilot study using Facebook”. Surgery, v. 163, n. 3, pp. 565-570. https://doi.org/10.1016/j.surg.2017.09.056
• Elliott, Elizabeth J.; Zurynski, Yvonne A. (2015). “Rare diseases are a ‘common’ problem for clinicians”. Australian family physician, v. 44, n. 9, pp. 630-633. https://search.informit.org/doi/10.3316/INFORMIT.512019547619809
• Epstein, Adam (2020). “For the first time, Netflix name-checked TikTok as a major competitor”. Yahoo finance, 17 July. https://finance.yahoo.com/news/first-time-netflix-name-checked-203316355.html
• Escobar-Pérez, Laura I.; Ávalos-Sandoval, Priscilla; Medeiros, Mara (2018). “Espacios digitales y enfermedades raras”. Revista digital universitaria, v. 19, n. 5, pp. 1-13. http://doi.org/10.22201/codeic.16076079e.2018.v19n5.a4
• Feuer, Will (2019). “TikTok removes two dozen accounts used for ISIS propaganda”. Consumer news and business channel, 21 October. https://www.cnbc.com/2019/10/21/tiktok-removes-two-dozen-accounts-used-for-isis-propaganda.html
• Fornieles-Alcaraz, Javier; Bañón-Hernández, Antonio-Miguel (2011). “An analysis of multimodal discourse: photographs in information on rare diseases”. In: Bañón-Hernández, Antonio-Miguel; Fornieles-Alcaraz, Javier; Solves-Almela, Josep A.; Rius-Sanchis, Inmaculada (coords.), Communication strategies and challenges for rare diseases: medical research as a referent a quantitative-discursive study of Spanish printed and digital written press (2009-2010). Valencia: Centro de Investigación Biomédica en Red de Enfermedades Raras, Feder, pp. 189-201. ISBN: 978 84 694 0596 3
• Haenlein, Michael; Anadol, Ertan; Farnsworth, Tyler; Hugo, Harry; Hunichen, Jess; Welte, Diana (2020). “Navigating the new era of influencer marketing: How to be successful on Instagram, TikTok, & co”. California management review, v. 63, n. 1, pp. 5-25. https://doi.org/10.1177/0008125620958166
• Hawn, Carleen (2009). “Take two aspirin and tweet me in the morning: how Twitter, Facebook, and other social media are reshaping health care”. Health affairs, v. 28, n. 2, pp. 361-368. https://doi.org/10.1377/hlthaff.28.2.361
• Herrick, Shannon S. C.; Hallward, Laura; Duncan, Lindsay R. (2021). “‘This is just how I cope’: An inductive thematic analysis of eating disorder recovery content created and shared on TikTok using# EDrecovery”. International journal of eating disorders, v. 54, n. 4, pp. 516-526. https://doi.org/10.1002/eat.23463
• Herrman, John (2019). “How TikTok is rewriting the world”. The New York Times, 10 March. https://www.nytimes.com/2019/03/10/style/what-is-tik-tok.html
• Iqbal, Mansoor (2021). “TikTok revenue and usage statistics”. Business of apps, 6 May. https://www.businessofapps.com/data/tik-tok-statistics
• Kennedy, Melanie (2020). “If the rise of the TikTok dance and e-girl aesthetic has taught us anything, it’s that teenage girls rule the internet right now: TikTok celebrity, girls and the coronavirus crisis”. European journal of cultural studies, v. 23, n. 6, pp. 1069-1076. https://doi.org/10.1177/1367549420945341
• King, Dominic; Ramírez-Cano, Daniel; Greaves, Felix; Vlaev, Ivo; Beales, Steve; Darzi, Ara (2013). “Twitter and the health reforms in the English National Health Service”. Health policy, v. 110, n. 2-3, pp. 291-297. https://doi.org/10.1016/j.healthpol.2013.02.005
• Kriegel, Elana R.; Lazarevic, Bojan; Athanasian, Christian E.; Milanaik, Ruth L. (2021). “TikTok, Tide Pods and Tiger King: health implications of trends taking over pediatric populations”. Current opinion in pediatrics, v. 33, p. 1, pp. 170-177. https://doi.org/10.1097/MOP.0000000000000989
• Krippendorff, Klaus (2004). Content analysis: An introduction to its methodology. London, UK: Sage. ISBN: 978 14 1298315 0
• Li, Yachao; Guan, Mengfei; Hammond, Paige; Berrey, Lane E. (2021). “Communicating Covid-19 information on TikTok: a content analysis of TikTok videos from official accounts featured in the Covid-19 information hub”. Health education research, n. 36, v. 3, pp. 261-271. https://doi.org/10.1093/her/cyab010
• Lim, Sunghoon; Tucker, Conrad S.; Kumara, Soundar (2017). “An unsupervised machine learning model for discovering latent infectious diseases using social media data”. Journal of biomedical informatics, v. 66, pp. 82-94. https://doi.org/10.1016/j.jbi.2016.12.007
• Livingstone, Sonia (2008). “Taking risky opportunities in youthful content creation: teenagers’ use of social networking sites for intimacy, privacy and self-expression”. New media & society, v. 10, n. 3, pp. 393-411. https://doi.org/10.1177/1461444808089415
• Lombard, Mattew; Snyder-Duch, Jennifer; Bracken, Cheryl-Campanella (2002). “Content analysis in mass communication: Assessment and reporting of intercoder reliability”. Human communication research, v. 28, n. 4, pp. 587-604. https://doi.org/10.1111/j.1468-2958.2002.tb00826.x
• López-Villafranca, Paloma (2016). “Visual frames of rare diseases on press and television in Spain”. Revista española de comunicación en salud, v. 7, n. 2, pp. 215-228. https://doi.org/10.20318/recs.2016.3447
• Lorenz, Taylor (2018). “TikTok is cringey and that’s fine. A social platform can’t scale without attracting normal users”. The Atlantic, 25 October. https://www.theatlantic.com/technology/archive/2018/10/what-tiktok-is-cringey-and-thats-fine/573871
• Lotan, Itay; Bacon, Tamar; Levy, Michael; Kister, Ilya (2020). “Harnessing the power of social media to learn about a very rare disorder: survey of Facebook group about paroxysmal symptoms in neuromyelitis optica spectrum disorder”. Neurology, v. 94, n. 15, pp. 16-36. https://n.neurology.org/content/94/15_Supplement/1636.abstract
• MacPhail, Catherine; Khoza, Nomhle; Abler, Laurie; Ranganathan, Meghna (2016). “Process guidelines for establishing intercoder reliability in qualitative studies”. Qualitative research, v. 16, n. 2, pp. 198-212. https://doi.org/10.1177/1468794115577012
• Maffesoli, Michel (2004). El tiempo de las tribus: el declive del individualismo en las sociedades de masa. Madrid: Siglo XXI. ISBN: 978 96 8232529 8
• Maganty, Nishita; Ilyas, Muneeb; Ginsberg, Zachary; Sharma, Amit (2018). “Social media as a platform for information and support for melanoma patients: Analysis of melanoma Facebook groups and pages”. JMIR Dermatology, n. 1, v. 1, e2. https://doi.org/10.2196/derma.8482
• Mak, Alvin (2020) “Explaining TikTok’s machine learning algorithm”. Jumpstarmag, 22 June. https://www.jumpstartmag.com/explaining-tiktoks-algorithm
• Mazur, Elisabeth; Kozarian, Lauri (2010). “Self-presentation and interaction in blogs of adolescents and young emerging edults”. Journal of adolescent research, v. 25, n. 1, pp. 124-144. https://doi.org/10.1177/0743558409350498
• Mechler, Konstantin; Rausch, Juliane; Mountford, William K.; Ries, Markus (2020). “Disease awareness or subtle product placement? Orphan diseases featured in the television series House, M.D. -a cross-sectional analysis”. BMC medical ethics, v. 21, n. 20, pp. 1-8. https://doi.org/10.1186/s12910-020-0463-x
• Milne, Christopher-Paul; Ni, Wendi (2017). “The use of social media in orphan drug development”. Clinical therapeutics, v. 39, n. 11, pp. 2173-2180. https://doi.org/10.1016/j.clinthera.2017.08.016
• Mohammadi, Ehsan; Gregory, Karl B.; Thelwall, Mike; Barahmand, Nilofar (2020). “Which health and biomedical topics generate the most Facebook interest and the strongest citation relationships?”. Information processing & management, v. 57, n. 3, pp. 1-16. https://doi.org/10.1016/j.ipm.2020.102230
• Mombini, Haadi; Li, Ruojun; Zhang, Yixin; Korkin, Dmitry; Tulu, Bengisu (2020). An exploratory study of social media analysis for rare diseases using machine learning algorithms: A case study of trigeminal neuralgia. Proceedings of the 53rd Hawaii international conference on system sciences, pp. 3840-3849. https://doi.org/10.24251/HICSS.2020.469
• Mukherjee, Kusumika (2019). “Care for rare: spotlight on rare diseases”. Trends in pharmacological sciences, v. 40, n. 4, pp. 227-228. https://doi.org/10.1016/j.tips.2019.02.008
• Neuendorf, Kimberly A. (2001). The content analysis guidebook. London: Sage. ISBN: 978 1 412979474
• Nielsen, Jakob (2006). The 90-9-1 rule for participation inequality in social media and online communities. Nielsen Norma Group, 9 October. https://www.nngroup.com/articles/participation-inequality
• O’Connor, Cliodhna; Joffe, Helene (2020). “Intercoder reliability in qualitative research: debates and practical guidelines”. International journal of qualitative methods, v. 19, n. 1, pp.1-13. https://doi.org/10.1177/1609406919899220
• Okagbue, Hilary I.; Oguntunde, Pelumi E.; Bishop, Sheila A.; Obasi, Emmanuela C. M.; Opanuga, Abiodun A.; Ogundile, Opeyemi P. (2020). “Review on the reliability of medical contents on YouTube”. International journal of online and biomedical engineering, v. 16, n. 1, pp. 83-99. https://doi.org/10.3991/ijoe.v16i01.11558
• Oliden, Paula-Elosua; Zumbo, Bruno D. (2008). “Coeficientes de fiabilidad para escalas de respuesta categórica ordenada”. Psicothema, v. 20, n. 4, pp. 896-901. https://reunido.uniovi.es/index.php/PST/article/view/8747
• Pappous, Athanasios; Marcellini, Anne; De-Léséleuc, Eric; Río-Valle, Schmidt; Quintana, Francisco-Cruz; García-Caro, María-Paz; Muñoz-Vinuesa, Antonio (2009). “La representación mediática del deporte adaptado a la discapacidad en los medios de comunicación”. Ágora para la educación física y el deporte, n. 9, pp. 31-42. https://dialnet.unirioja.es/servlet/articulo?codigo=2900313
• Patel, Sagar S.; Majhail, Navneet S. (2018). “Twitter use in the hematopoietic cell transplantation community”. Current hematologic malignancy reports, n. 13, pp. 53-58. https://doi.org/10.1007/s11899-018-0434-1
• Pemmaraju, Naveen; Utengen, Audun; Gupta, Vikas; Kiladjian, Jean-Jacques; Mesa, Ruben; Thompson, Michael A. (2017). “Rare cancers and social media: analysis of Twitter metrics in the first 2 years of a rare-disease community for myeloproliferative neoplasms on social media”. Current hematologic malignancy reports, n. 12, pp. 598-604. https://doi.org/10.1007/s11899-017-0421-y
• Pernencar, Claudia; Saboia, Inga (2020). “How is the administrator’s experience in managing health Facebook groups? The impact of social media in patients with IBD”. In: Vale-Costa, Liliana; Oliveira, Sónia (eds.), Communicating rare diseases and disorders in the digital age. Pennsylvania, USA: IGI Global, pp. 315-341. ISBN: 978 1 799820888
• Richter, Trevor; Nestler-Parr, Sandra; Babela, Robert; Khan, Zeba M.; Tesoro, Theresa; Molsen, Elizabeth; Hughes, Dyfrig A. (2015). “Rare disease terminology and definitions - a systematic global review: report of the Ispor rare disease special interest group”. Value in health, v. 18, n. 6, pp. 906-914. https://doi.org/10.1016/j.jval.2015.05.008
• Rodríguez, Daniel E.; Said-Hung, Elías (2010). “Identidad y subjetividad en las redes sociales virtuales: caso de Facebook”. Zona próxima, n. 12, pp. 190-207. https://www.redalyc.org/pdf/853/85316155013.pdf
• Rodríguez-Orgaz, César (2020). “Discurso y salud: análisis de un debate social”. Rilce, v. 36, n. 2, pp. 801-804. https://revistas.unav.edu/index.php/rilce/article/view/40110
• Roth, Adam R. (2020). “Social networks and health in later life: a state of the literature”. Sociology of health & illness, v. 42, n. 7, pp. 1642-1656. https://doi.org/10.1111/1467-9566.13155
• Sánchez-Castillo, Sebastián (2012). “Discurso visual de las enfermedades raras: encuadres latentes”. Tonos digital: Revista electrónica de estudios filológicos, v. 23, pp. 1-24. http://hdl.handle.net/10201/42375
• Sánchez-Castillo, Sebastián (2013). “Las enfermedades raras en la prensa española, una aproximación empírica desde la teoría del framing”. Ámbitos. Revista internacional de comunicación, v. 22, pp. 1-16. https://www.redalyc.org/pdf/168/16832253008.pdf
• Sauter, Theresa (2014). “‘What’s on your mind?’ Writing on Facebook as a tool for self-formation”. New media & society, v. 16, n. 5, pp. 823-839. https://doi.org/10.1177/1461444813495160
• Schumacher, Kurt R.; Stringer, Kathleen A.; Donohue, Janet E.; Yu, Sunkyung; Shaver, Ashley; Caruthers, Regine L.; Zikmund-Fisher, Brian J.; Fifer, Carlen; Goldberg, Caren; Russell, Mark W. (2014). “Social media methods for studying rare diseases”. Pediatrics, v. 133, n. 5, e1345-e1353. https://doi.org/10.1542/peds.2013-2966
• Seco-Sauces, María-Olga; Ruiz-Callado, Raúl (2020a). “Las enfermedades raras en la red. Oportunidades organizacionales en la sociedad digital”. Prisma social, n. 29, pp. 98-122. https://revistaprismasocial.es/article/view/3582
• Seco-Sauces, María; Ruiz-Callado, Raúl (2020b). “Uso de la web 2.0 en comunidades virtuales de pacientes con enfermedades raras en España”. Comunicación y sociedad, v. 17, n. 1, pp. 1-21. https://doi.org/10.32870/cys.v2020.7384
• Smith, Nicholas C. (2020). “How can stigma contribute to our understanding of the formation and mobilization of collective identities in health social movements?”. Sociology compass, v. 14, n. 6, pp. 1-11. https://doi.org/10.1111/soc4.12796
• Stone, Judy (2015). “Social media is a lifeline for patients with rare diseases”. Forbes, 2 March. https://www.forbes.com/sites/judystone/2015/03/02/social-media-a-lifeline-for-patients-with-rare-diseases
• Subirats, Laia; Reguera, Natalia; Bañón, Antonio-Miguel; Gómez-Zúñiga, Beni; Minguillón, Julià; Armayones, Manuel (2018). “Mining Facebook data of people with rare diseases: A content-based and temporal analysis”. International journal of environmental research and public health, v. 15, n. 9, pp. 1-13. https://doi.org/10.3390/ijerph15091877
• Thelwall, Mike; Levitt, Jonathan M. (2020). “Retweeting Covid-19 disability issues: Risks, support and outrage”. El profesional de la información, v. 29, n. 2, e290216. https://doi.org/10.3145/epi.2020.mar.16
• Thompson, Michael A.; Majhail, Navneet S.; Wood, William A.; Perales, Miguel-Ángel; Chaboissier, Mélanie (2015). “Social media and the practicing hematologist: Twitter 101 for the busy healthcare provider”. Current hematologic malignancy reports, n. 10, pp. 405-412. https://doi.org/10.1007/s11899-015-0286-x
• Tolentino, Jia (2019), “How TikTok holds our attention”. The New Yorker, 23 September. https://www.newyorker.com/magazine/2019/09/30/how-tiktok-holds-our-attention
• Torrente, Elena; Martí, Tino; Escarrabill, Joan (2010). “Impacto de las redes sociales de pacientes en la práctica asistencial”. Revista de innovación sanitaria y atención integrada, v. 2, n. 1, pp. 1-8. https://www.opimec.org/media/files/Impacto_de_las_Redes_Sociales.pdf
• Tozzi, Alberto E.; Mingarelli, Rita; Agricola, Eleonora; Gonfiantini, Michaela; Pandolfi, Elisabetta; Carloni, Emanuela; Gesulado, Francesco; Dallapiccola, Bruno (2013). “The internet user profile of Italian families of patients with rare diseases: A web survey”. Orphanet journal of rare diseases, v. 8, n. 76, pp. 1-8. https://doi.org/10.1186/1750-1172-8-76
• Umair, Sobia (2018). “TikTok, the app super popular with kids, has a nudes problem”. Republic of buzz, 7 December. https://republicofbuzz.com/tiktok-the-app-super-popular-with-kids-has-a-nudes-problem
• Unni, Zoya; Weinstein, Emily (2021). “Shelter in place, connect online: Trending TikTok content during the early days of the US Covid-19 pandemic”. Journal of adolescent health, n. 68, v. 5, pp. 863-868. https://doi.org/10.1016/j.jadohealth.2021.02.012
• Valdez, Rodolfo; Ouyang, Lijing; Bolen, Julie (2016). “Public health and rare diseases: oxymoron no more”. Preventing chronic disease, v. 13, n. 1, pp. 1-4. https://doi.org/10.5888/pcd13.150491
• Van-Krieken, Robert (2012). Celebrity society. New York: Routledge. ISBN: 978 0 203116340
• Veningston, Keith; Kadry, Seifedine; Kalash, Haydar-Sabeeh; Balamurugan, Balasubramanian; Sathiyaraj, Rajendran (2020). “Intelligent social network based data modeling for improving health care”. Health and technology, v. 10, n. 1, pp. 321-332. https://doi.org/10.1007/s12553-019-00303-w
• Villa-Ruiz, Camila; Kassamali, Bina; Mazori, Daniel R.; Min, Michelle; Cobos, Gabriela; LaChance, Avery (2021). “Overview of TikTok’s most viewed dermatologic content and assessment of its reliability”. Journal of the American Academy of Dermatology, v. 85, n. 1, pp. 273-274. https://doi.org/10.1016/j.jaad.2020.12.028
• Vivas, Javier (2019). “El papel de las redes sociales en la salud”. Diariofarma, 12 junio. https://www.diariofarma.com/2019/06/12/el-papel-de-las-redes-sociales-en-la-salud
• Wahl, Otto; Hanrahan, Erin; Karl, Kelly; Lasher, Erin; Swaye, Janel (2007). “The depiction of mental illnesses in children’s television programs”. Journal of community psychology, v. 35, n. 1, pp. 121-133. https://doi.org/10.1002/jcop.20138
• Wakap, Stéphanie-Nguengang; Lambert, Deborah M.; Olry, Annie; Rodwell, Charlotte; Gueydan, Charlotte; Lanneau, Valérie; Murphy, Daniel; Le-Cam, Yann; Rath, Ana (2020). “Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database”. European journal of human genetics, n. 28, pp. 165-173. https://doi.org/10.1038/s41431-019-0508-0
• Walker, Kimberly K. (2013). “Rare disease-specific social media sites: An opportunity for collaboration”. Journal of communication in healthcare, v. 6, n. 1, pp. 71-76. https://doi.org/10.1179/1753807612Y.0000000026
• Weimann, Gabriel; Masri, Natalie (2020). “Research note: spreading hate on TikTok”. Studies in conflict & terrorism, n. 43, pp. 1-14. https://doi.org/10.1080/1057610X.2020.1780027
• Zheng, David X.; Mulligan, Kathleen M.; Scott, Jeffrey F. (2021). “TikTok and dermatology: An opportunity for public health engagement”. Journal of the American Academy of Dermatology, v. 85, n. 1, pp. 25-26. https://doi.org/10.1016/j.jaad.2021.02.050
• Zheng, David X.; Ning, Anne Y.; Levoska, Melissa A.; Xiang, Laura; Wong, Christina; Scott, Jeffrey F. (2021). “Acne and social media: A cross-sectional study of content quality on TikTok”. Pediatric dermatology, v. 38, n. 1, pp. 336-338. https://doi.org/10.1111/pde.14471
• Zhou, Lina; Zhang, Dongsong; Yang, Christopher C.; Wang, Yu (2018). “Harnessing social media for health information management”. Electronic commerce research and applications, v. 27, n.1, pp. 139-151. https://doi.org/10.1016/j.elerap.2017.12.003
• Zhu, Chengyan; Xu, Xiaolin; Zhang, Wei; Chen, Jianmin; Evans, Richard (2019). “How health communication via TikTok makes a difference: A content analysis of TikTok accounts run by Chinese provincial health committees”. International journal of environmental research and public health, v. 17, n. 1, pp. 1-13. https://doi.org/10.3390/ijerph17010192