¿Padres secuestradores o empoderados? Cómo la cobertura mediática del caso Ashya King difundió la terapia de protones en la esfera pública

  1. Sapiña, Lucía 1
  2. Ligero, Susanna 1
  3. Domínguez, Martí 1
  1. 1 University of Valencia (Spain)
Journal:
Estudios sobre el mensaje periodístico

ISSN: 1988-2696

Year of publication: 2018

Issue: 24

Pages: 1773-1787

Type: Article

DOI: 10.5209/ESMP.62246 DIALNET GOOGLE SCHOLAR lock_openOpen access editor

More publications in: Estudios sobre el mensaje periodístico

Abstract

The case of Ashya King, the child brain tumour patient whose parents took from a British hospital so he could be treated with Proton Beam Therapy (PBT) abroad, contributed to popularize that technology among a general audience. Through the content analysis of British and Spanish press coverage (N=329), our research shows that proton therapy enjoyed scarce coverage in the analysed media before Ashya King’s case. His story, magnified due to the fact that his parents were Jehovah’s witnesses was a cause both for public concern and media sensationalism. We show that the case brought PBT into the public sphere and, consequently, contributed to create a demand for facilities that offered this therapy. This case provides new data about how technology and medical controversy reaches different audiences: while the sphere of experts keeps debating about the benefits of the therapy, the public sphere has already decided to adopt

Bibliographic References

  • Allen, Aaaron M.; Pawlicki, Todd; Dong, Lei; Fourkal, Eugene; Buyyounouski, Mark; Cengel, Keith;… Konski, Andre A. (2012): "An evidence based review of proton beam therapy: the report of ASTRO's emerging technology committee". Radiotherapy and Oncology: Journal of the European Society for Therapeutic Radiology and Oncology, 103 (1), 8. Doi: 10.1016/j.radonc.2012.02.001
  • Appleby, John & Roberts, Ruth (2016): "Public satisfaction with the NHS in 2015. Results and trends from the British Social Attitudes survey". The King’s Fund. Retrieved from: https://www.kingsfund.org.uk/publications/public-satisfaction-nhs-2015. [Accessed on 15 June 2017].
  • Bell, David; Holliday, Ruth; Ormond, Meghann; and Mainil, Tomas (2015): "Transnational healthcare, cross-border perspectives". Social Science and Medicine, 124, 284-289. Doi: 10.1016/j.socscimed.2014.11.014
  • Benson, Kaaron (1995): "Management of the Jehovah’s Witness oncology patient: Perspective of the transfusion service". Cancer Control, 2 (6), 552-556.
  • Brada, Michael; Pijls-Johannesma, Madelon; & De Ruysscher, Dirk (2007): "Proton therapy in clinical practice: current clinical evidence". Journal of Clinical Oncology, 25 (8), 965-970. Doi: 10.1200/JCO.2006.10.0131
  • Childs, Stephanie K.; Kozak, Kevin R.; Friedmann, Alison M.; Yeap, Beow Y.; Adams, Judith; MacDonald, Shannon M.;… Yock, Torunn I. (2012): "Proton radiotherapy for parameningeal rhabdomyosarcoma: clinical outcomes and late effects". International Journal of Radiation Oncology, Biology, Physics, 82 (2), 635-642. Doi:10.1016/j.ijrobp.2010.11.048
  • Collins, Harry M. (2014): Are We All Scientific Experts Now?. Cambridge, UK; Malden, MA, Polity.
  • Domínguez, Martí & Sapiña, Lucía (2015): "Pediatric cancer and the Internet: exploring the gap in doctor-parents communication". Journal of Cancer Education, 30, 145-151. Doi: 10.1007/s13187-014-0700-4
  • Epstein, Keith (2012): "Is spending on proton beam therapy for cancer going too far, too fast?" British Medical Journal, 344 (7853), 20-21. Doi: https://doi.org/10.1136/bmj.e2488
  • Evans, D. Gareth R.; Barwell, Julian; Eccles, Diana M.; Collins, Amanda; … Murray, Alex (2014): "The Angelina Jolie effect: how high celebrity profile can have a major impact on provision of cancer related services". Breast Cancer Research, 16, 442-448. Doi: 10.1186/s13058-014-0442-6
  • Fleck, Ludwik (1979): Genesis and Development of a Scientific Fact. Chicago, University of Chicago Press.
  • Galtung, Johan & Ruge, Mari Holmboe (1981): "The structure of foreign news". Journal of Peace Research, 2, 64-91.
  • Goitein, Michael & Cox, James D. (2008): "Should randomized clinical trials be required for proton radiotherapy?". Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 26 (2), 175-176. Doi: 10.1200/JCO.2007.14.4329
  • Habermas, Jürgen (1992): The Structural Transformation of the Public Sphere. Cambridge, Polity Press.
  • Hall, Eric J. (2006): "Intensity-modulated radiation therapy, protons, and the risk of second cancers". International Journal of Radiation Oncology, Biology, Physics, 65 (1), 1-7. Doi: 10.16/j.ijrobp.2006.01.027
  • Hawkes, Nigel (2014): "Advantages of proton beam therapy in Ashya King's type of cáncer are small, doctors say". British Medical Journal, 349: g5610. Doi: 10.1136/bmj.g5610
  • Helft, Paul R.; Hlubocky, Fay; and Daugherty, Christopher K. (2003): "American oncologists’ views of Internet use by cancer patients: a mail survey of American society of clinical oncology members". Journal of Clinical Oncology, 21 (5), 942-947. Doi: 10.1200/JCO.2003.08.007
  • Imes, Rebecca S.; Bylund, Carma L.; Sabee, Christina M.; Routsong, Tracy R.; andSanford, Amy Aldrige (2008): "Patient' reasons for refraining from discussing Internet health information with their healthcare providers". Health Communication, 23, 538- 547. Doi: 10.1080/10410230802460580
  • Kivits, Joëlle (2009): "Everyday health and the internet: a mediated health perspective on health information seeking". Sociology of Health & Illness, 31 (5), 673-687. Doi: 10.1111/j.1467-9566.2008.01153.x
  • Levin, W. P.; Kooy, H.; Loeffler, J. S.; and DeLaney, T. F. (2005): "Proton beam therapy". British Journal of Cancer, 93, 849-854. Doi: 10.1038/sj.bjc.6602754
  • Lewis, Brett E. (2008): "On equipoise and emerging technologies". Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 26 (15), 2590. Doi: 10.1200/JCO.2008.16.5191
  • Merchant, Thomas E. (2009): "Proton beam therapy in pediatric oncology". Cancer Journal 15 (4), 298. Doi: 10.1097/PPO.0b013e3181b6d4b7
  • Merchant, Thomas E. (2013): Clinical Controversies: Proton Therapy for Pediatric Tumors. United States, Elsevier BV. Doi: 10.1016/j.semradonc.2012.11.008
  • Mills, Michael D. & Schulz, R. J. (2015): "Proton‐beam therapy: are physicists ignoring clinical realities?". Journal of Applied Clinical Medical Physics, 16 (3), 1-7. Doi: 10.1120/jacmp.v16i3.5710
  • National Health Service (2015): "NHS English medical director welcomes proton beam therapy announcement". Retrieved from: www.england.nhs.uk/2015/03/11/protonbeam- therapy [accessed 17 May 2017].
  • National Radiotherapy Advisory Group (2007): "Radiotherapy: developing a world class service for England". Report to Ministers from National Radiotherapy Advisory Group. Retrieved from: webarchive.nationalarchives.gov.uk/20130107105354/http://www.dh.gov.uk/prod_cons um_dh/groups/dh_digitalassets/%40dh/%40en/documents/digitalasset/dh_074576.pdf [accessed 17 May 2017].
  • Richards, Tessa (2014): "When doctors and patients disagree". British Medical Journal, 349: g5567. Doi: https://doi.org/10.1136/bmj.g5567
  • Rombi, Barbara; Vennarini, Sabina; Vinante, Lorenzo; Ravanelli, Daniele; and Amichetti, Maurizio (2014): "Proton radiotherapy for pediatric tumors: review of first clinical results". Italian Journal of Pediatrics, 40 (1), 74. Doi: 10.1186/s13052-014-0074-6
  • Song, Sanghyuk; Park, Hyeon Jin; Yoon, Jong Hyung; Kim, Dae Woong; Park, Jeonghoon, Shin; Dongho,… Kim, Joo-Young (2014): "Proton beam therapy reduces the incidence of acute haematological and gastrointestinal toxicities associated with craniospinal irradiation in pediatric brain tumors". Acta Oncologica, 53 (9), 1158-1164. Doi: 10.3109/0284186X.2014.887225
  • Wooley, S. (2005): "Children of Jehovah’s witnesses and adolescent Jehovah’s witnesses: what are their rights?" Archives of Disease in Childhood, 90 (7), 715-719. Doi: 10.1136/adc.2004.067843
Data source: Dialnet